After we received the terrible diagnosis, my parents drove in from Birmingham that night and got to the hospital in Baton Rouge about 2:30 a.m. Kristopher's family also came to the hospital to be with us as the horrible news sunk in and while we watched Barrett's condition. Luckily, parents are allowed to stay overnight in the PICU, so Kristopher and I stayed all the time and only ever left to go home for showers.
We learned that, in a nutshell, the SVT caused his heart to beat too fast and the cardiomyopathy caused his heart to stop beating. If we can control the SVT with medicine, we can control the cardiomyopathy. But unfortunately, it did not look like Barrett's SVT was the type that would respond to medicine. Unbelieveably, Barrett's condition radically improved -- The doctors put him on a ventilator and feeding tube so that Barrett's little body only had to work on making his heart beat. This worked! His heart started responding to the medications and the echocardiogram showed that his heart muscles were pumping again!!
We know that this was God's work. We are just overwhelmed by the outpouring of support from friends and family who took care of us and prayed so hard for little Barrett. It still gives me chills to think of how things almost turned out and how blessed we are to have our little boy.
Although we were orignally told we might be there for weeks, we only had to stay in ICU five days. The doctors sent us home with Barrett's new heart medicine and an appointment for two days later to discuss his condition and lifestyle adjustments. All of the doctors and nurses marveled over his remarkable improvement. We are so proud of Barrett ~ he is a fighter!